That really sucks. I’m sorry to hear that. Community support is huge, especially with rare illnesses. I’m not sure if it will be helpful, but try and search for your illness via hashtags on different mastodon servers. Sometimes things are missing from one server or another. I sadly don’t have any advice for BlueSky. But I wish you luck, everyone deserves to have a community.
That really sucks. I’m sorry to hear that. Community support is huge, especially with rare illnesses. I’m not sure if it will be helpful, but try and search for your illness via hashtags on different mastodon servers. Sometimes things are missing from one server or another. I sadly don’t have any advice for BlueSky. But I wish you luck, everyone deserves to have a community.