Photoepilepsy is a disease. If that’s why they’re getting gene therapy, then great.
In my case, I have adrenoleukodystrophy, a genetic demyelenating disease, and I want nothing more than to get gene therapy so I stop losing the ability to walk (because my existing nerve damage will never heal, the most gene therapy can do is keep it from getting worse, which would still be very good) and being at risk of dying every time I hit my head.
I really do appreciate the value of gene therapy for treating diseases. But this isn’t being presented as a “photoepilepsy jab”, it’s being presented as autism jab, and autism is not a disease.
I wasn’t saying it was a photoepilepsy jab, forgive me for being unclear. I was just establishing a baseline here for my own reference. The next element is: there are symptoms of ASD (which is really a collection of conditions that get lumped together due to comorbidity) that plainly damage someone’s quality of life not because of society being cruel to ND people (which it is and is the most common reason for someone with ASD suffering), such as being hypersensitive to sound, being overstimulated to the point of torture by being in a crowd of people, etc, without getting into the more extreme cases. Imagining that these sensory issues could be separated from benign things like “preference for concrete thinking”, wouldn’t it be good to have a way to prevent people from having that condition?
Photoepilepsy is a disease. If that’s why they’re getting gene therapy, then great.
In my case, I have adrenoleukodystrophy, a genetic demyelenating disease, and I want nothing more than to get gene therapy so I stop losing the ability to walk (because my existing nerve damage will never heal, the most gene therapy can do is keep it from getting worse, which would still be very good) and being at risk of dying every time I hit my head.
I really do appreciate the value of gene therapy for treating diseases. But this isn’t being presented as a “photoepilepsy jab”, it’s being presented as autism jab, and autism is not a disease.
I wasn’t saying it was a photoepilepsy jab, forgive me for being unclear. I was just establishing a baseline here for my own reference. The next element is: there are symptoms of ASD (which is really a collection of conditions that get lumped together due to comorbidity) that plainly damage someone’s quality of life not because of society being cruel to ND people (which it is and is the most common reason for someone with ASD suffering), such as being hypersensitive to sound, being overstimulated to the point of torture by being in a crowd of people, etc, without getting into the more extreme cases. Imagining that these sensory issues could be separated from benign things like “preference for concrete thinking”, wouldn’t it be good to have a way to prevent people from having that condition?